God has continued to provide for us through the generosity of others and by meeting other needs in tremendous ways. Our local hospital even waived a payment that Daddy had been paying for his own health expenses. Families provided meals several nights a week during our first month back home. What a blessing it was to look forward to home cooked meals that we didn't have to prepare! People continue to amaze us with their love and support.
Jordan is brought up in conversation daily. How much we miss him... How much it hurts that he's not here with us... How thankful we are for the 34 days we had the honor to spend with him. Caleb talks about baby Jordan frequently. "Baby Jordan is in heaven with Jesus?" "Can we go see him? That would be amazing!" "Can we go to the hospital and play with the balls and see baby Jordan?" "Are you sad because you miss baby Jordan? Well, I'm sad too..."
It turned out to be quite the chore, but Brandi was able to donate all of her milk through CHOP. It is nice to know that someone will be able to use it. We know of at least one mom that we got to know at CHOP who got to bring her baby home this month. We are so excited to hear a survival story about a baby overcoming severe CDH.
We love Jordan greatly and will always treasure the moments we had with him. We will never forget him. Others have told us that the pain lessens with time. For now, we are just thankful that we have each other and are thankful for today.
Daddy made a video for Jordan's memorial service that we would like to share. Although only a few family members could join us in Philadelphia on this journey, Jordan's life inspired so many people. Our hope is to share the precious few moments that we will cherish forever.
Such a beautiful video in memory of such a special boy. We continue to keep your family in our prayers.
ReplyDeleteGod Bless You all, Thanks for putting the video up so we could get a glimpse of what You all went through with Your Son.
ReplyDeleteWe were all behind You through thoughts and Prayers.
Cousin, James Legleiter.
Not sure if you remember us or not, but we were one of the other CDH families at CHOP. I'm so glad that we found your blog...your journey is such an inspiration and this video clearly depicts your strength and Jordan's spirit. Thank you for sharing such a personal experience. You will forever be in our hearts.
DeleteThanks Meredith and Bryan! Yes we remember you! We hope you and your little one are doing well. It is hard knowing that Jordan is not here with us; we miss him so much. But we are so thankful for the 34 days we got to spend with him. He was a beautiful, strong boy with a will to fight, CDH was just too much in the end. Jordan will forever live in our hearts and I know we will get to see him again someday. Thanks so much for taking the time for taking the time to look up his blog; it means a lot to us. Happy Valentine's Day!
DeleteJames, thank you so much for following Jordan's entire journey. We greatly appreciate your support, prayers and love! Thanks so much!
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