Here are some resources that we have found extremely helpful:
Information About CDH
University of California, San Francisco; The Fetal Treatment Center
http://fetus.ucsfmedicalcenter.org/cdh/
Children's Hospital of Philadelphia
http://www.chop.edu/service/fetal-diagnosis-and-treatment/fetal-diagnoses/congenital-diaphragmatic-hernia-cdh.html
Cherubs
http://www.cdhsupport.org/
TheFetus.net
http://www.sonoworld.com/fetus/page.aspx?id=229
Other Blogs and Personal Accounts of CDH
Ava- Hope for Congenital Diaphragmatic Hernia (This story especially resonated with us) http://avaslifewithcdh.blogspot.com/p/avas-story.html